Violet's Village

Violet was born with 3 rare one-in-a-million genetic disorders: Alternating Hemplegia of Childhood (AHC), Hemiplegic Migraine Type 2 (HM), and Congenital Muscular Dystrophy caused by Collagen 6 deficiency (UCMD). AHC is a movement disorder that is described as having every single neurological symptom that exists. Imagine having Cerebral Palsy, Parkinson’s, MS, Autism, ADHD, Alzheimer’s, etc all rolled into one disorder. It causes episodes of paralysis, dystonia (painful stiffening of limbs and body), involuntary eye-movements, seizures and more. Often, paralysis episodes cause loss of function or cognitive ability. This can be temporary or result in permanent decline. Violet has had a steep decline in recent years and is no longer walking, standing, or able to speak words she once knew. For more information on AHC, check out ahckids.org or watch the documentary on AHC at humantimebombs.com. Hemiplegic Migraine causes stroke-like migraines that cause facial drooping, paralysis, vision c