Bed for Isla

When Isla was diagnosed with Ventriculomegaly at 32 weeks, her doctors did everything they could to prepare us for the “what-ifs.” They informed us, that we would have to be admitted to the NICU so that they could monitor her brain and perform an MRI. They told us, that not much was known of VM, but that the “worst case scenario” would be that she may have some developmental issues. However; when Isla was born, the “worst-case scenario” became the least of our concerns. She immediately had to be put on oxygen and a heart monitor because neither her heart nor lungs were fully developed at 39 weeks. She was incredibly small for being full-term, and she had many features that did not fit the bill for what a child with VM would have. As she got older, the features became more apparent, and the “issues” became greater. It’s like we were constantly climbing up a mountain, and whenever we got closer to the top, it would just get steeper. Thankfully, our pediatrician back in Georgia was recept